Jay Shares His Neuroendocrine Cancer Journey at the 2026 NCF Patient Conference in Atlanta, GA
In this video, Jay shares his personal journey with neuroendocrine tumors after being diagnosed six years ago. Jay discusses how his diagnosis began with tumors found in his bowel, which later spread to his liver. He reflects on the importance of finding neuroendocrine tumor specialists and building the right care team, including his current care at Emory. Throughout his journey, Jay has received several treatments, including PRRT, lanreotide injections, everolimus, and cabozantinib. He also shares how he stays positive, manages setbacks, and continues to focus on living each day to the fullest. Topics include: • Jay’s neuroendocrine tumor diagnosis • The importance of seeing specialists • Treatment experiences with PRRT, lanreotide, everolimus, and cabozantinib • Living with metastatic neuroendocrine tumors • Staying hopeful through challenges • Advice for patients and caregivers This video is helpful for patients, caregivers, and anyone looking to better understand the lived experience of neuroendocrine tumors. _____________________________________________________________ ABOUT Neuroendocrine Cancer Patient Education Conference Atlanta, GA May 16, 2026 The Neuroendocrine Cancer Foundation (NCF) hosted a free, in-person educational conference at the Emory Winship Cancer Institute designed specifically for people living with neuroendocrine cancer and their caregivers. This one-day program brought together leading experts from Emory University, the University of Alabama at Birmingham, and Vanderbilt University to share practical, up-to-date information on the diagnosis and management of neuroendocrine cancer. Local and regional neuroendocrine cancer specialists presented the latest insights in neuroendocrine cancer care, including multidisciplinary approaches to surgery; advances in liver-directed therapy, systemic treatments, PRRT, and clinical trials; and emerging research on GLP-1 agents and neuroendocrine tumors. In addition to expert-led presentations, attendees heard patient stories and had the opportunity to engage directly with specialists during live Q&A sessions. The interactive format helped empower patients and caregivers with knowledge, confidence, and a clearer understanding of available treatment options and care pathways. Special thanks to Dr. Udhayvir Grewal for collaborating with NCF to make this event possible. For more information, visit https://www.ncf.net/events/atlanta.
In this video, Jay shares his personal journey with neuroendocrine tumors after being diagnosed six years ago. Jay discusses how his diagnosis began with tumors found in his bowel, which later spread to his liver. He reflects on the importance of finding neuroendocrine tumor specialists and building the right care team, including his current care at Emory. Throughout his journey, Jay has received several treatments, including PRRT, lanreotide injections, everolimus, and cabozantinib. He also shares how he stays positive, manages setbacks, and continues to focus on living each day to the fullest. Topics include: • Jay’s neuroendocrine tumor diagnosis • The importance of seeing specialists • Treatment experiences with PRRT, lanreotide, everolimus, and cabozantinib • Living with metastatic neuroendocrine tumors • Staying hopeful through challenges • Advice for patients and caregivers This video is helpful for patients, caregivers, and anyone looking to better understand the lived experience of neuroendocrine tumors. _____________________________________________________________ ABOUT Neuroendocrine Cancer Patient Education Conference Atlanta, GA May 16, 2026 The Neuroendocrine Cancer Foundation (NCF) hosted a free, in-person educational conference at the Emory Winship Cancer Institute designed specifically for people living with neuroendocrine cancer and their caregivers. This one-day program brought together leading experts from Emory University, the University of Alabama at Birmingham, and Vanderbilt University to share practical, up-to-date information on the diagnosis and management of neuroendocrine cancer. Local and regional neuroendocrine cancer specialists presented the latest insights in neuroendocrine cancer care, including multidisciplinary approaches to surgery; advances in liver-directed therapy, systemic treatments, PRRT, and clinical trials; and emerging research on GLP-1 agents and neuroendocrine tumors. In addition to expert-led presentations, attendees heard patient stories and had the opportunity to engage directly with specialists during live Q&A sessions. The interactive format helped empower patients and caregivers with knowledge, confidence, and a clearer understanding of available treatment options and care pathways. Special thanks to Dr. Udhayvir Grewal for collaborating with NCF to make this event possible. For more information, visit https://www.ncf.net/events/atlanta.